There is no cure for ALS and care focuses on maintaining functional ability and providing palliative and symptomatic interventions to relieve the burden of symptoms ( 1). If life-sustaining measures such as invasive ventilation are taken, patients may terminate in a locked-in state with a clear mind in a paralyzed body. On average, patients die within 3 years after symptom onset. This is a JPND-funded work to summarize findings of the project NEEDSinALS ( which highlights subjective perspectives and preferences in medical decision making in ALS.Īmyotrophic lateral sclerosis (ALS) is among the most devastating neurological conditions: patients lose the ability to speak, to walk and eventually to breathe. There are intrinsic and extrinsic factors that have been shown to successfully facilitate and secure QoL in ALS which will be reviewed in the following article following the four ethical principles (1) Beneficence, (2) Non-maleficence, (3) Autonomy and (4) Justice, which are regarded as key elements of patient centered medical care according to Beauchamp and Childress. Thus, there is no fatalistic link of loss of QoL when physical health declines. Current data provide extensive evidence that psychosocial adaptation in ALS is possible, indicated by a satisfactory QoL. Some people without neurodegenerative conditions believe that physical decline is incompatible with satisfactory QoL. Further, the definition of QoL and the question whether survival in this severe condition is compatible with a good QoL is a matter of subjective and culture-specific debate. This is a major challenge in severe medical conditions with a prognosis such as amyotrophic lateral sclerosis (ALS). It is one of the primary goals of medical care to secure good quality of life (QoL) while prolonging survival. 2Interventional Psychology, Psychology III, University of Würzburg, Würzburg, Germany.1Department of Neurology, University of Ulm, Ulm, Germany.Dorothée Lulé 1 * Andrea Kübler 2 Albert C.
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But I’m not wonder woman! I bought these for £1 in a local charity shop. Although it would be easy to do so with old Christmas cards. I then attached a little homemade gift tag to write a message on.Īnd no, don’t worry, I didn’t make those tags too. I used cellotape doubled over to stick the label onto the jar. You’ll be giving homemade edible gifts to everyone this year after this. And also encourages you to make 9 jars in one go. This was to get as much onto one piece of paper as possible. You’ll see that there are 9 labels on one sheet. The flour blend is made with low FODMAP ingredients so is perfect for anyone with Irritable Bowel Syndrome (IBS) or sensitive tummies.ĭownload a copy of your free printable above. If you want to learn how to make the flour blend along with a large range of delicious gluten free goodies then sign up for one of my cookery online courses here.įor more information about the blend and why I created it scroll down… To make 1kg wholegrain gluten free flour blend combine:ġ00g potato starch Gluten free cookery courses The Free From Fairy gluten free flour blend recipe Thank you so much in advance for your support. If you’d like to make a donation for the recipe that will help me to continue to run this website you can do so here. However, as my aim is to be of service in this life I have decided to share the recipe for the blend so that you can create all the recipes using it that I share on this site. I am no longer manufacturing and selling this flour blend due to price increases, insecurity of ingredients and manufacturing facilities. You only need the one flour blend to make everything from bread to cakes and even pasta. My flour blend contains 70% wholegrain flours, giving a more sustained impact on blood sugar levels as well as providing fibre, protein and other micronutrients like calcium and iron.įinally, it works in all baking. These act in the same way in our body as eating sugar and mean that we get a spike of high blood sugar levels followed by a slump, after eating them. Secondly, I created it because almost all other gluten free flour blends are made from white refined flours. This is something that is an issue on the gluten free diet because almost all baked goods are made from rice flour. There are several reasons why I suggest you use my gluten free flour blend in this recipe.įirstly, I created it to avoid rice, and the fact that there is arsenic in rice. Then I highly recommend either using dark chocolate chips, M&M’s or hazelnuts as the filling for the cookies. If you have a massive chocoholic in your life (me!) you could remove 20g of the flour and replace it with 20g cocoa instead. Gluten Free Diet For Beginners: Free E-Course.Simple Gluten Free Breakfast Recipe Book.Gluten Free Easter Recipes (Downloadable Book).How To Make Gluten Free Pastry – Recipe E-Book.Gluten Free Christmas Recipes (Downloadable Book).How To Make Gluten Free Puff Pastry – Video Lesson.Gluten Free Savoury Bakes Online Cooking Course.Gluten Free Christmas Cookery Live Online Lessons – 2022.The result is a lovely jar filled with a tasty cookie mix for ‘Candy Cookies. Then with a rubber spatula and a small glass (or baby food jar), pack down and smooth each layer before adding the next ingredient. Just add butter, an egg and vanilla, mix it all together, drop dough onto prepared cookie sheet and bake! You could even make and gift some homemade vanilla while you’re at it.Ī trick we discovered for filling the jars was to put each powdery layer (so flour, cocoa, sugars) on a piece of waxed paper (or parchment would work too) to neatly funnel each layer into the jar. Then we sealed up the jar, added a bow and included an instruction card for how to make the ‘Candy Cookies’ from the jar.įor the recipient, making the cookies is quite simple. If you find yourself buying more and more gift cards each year, then these gift ideas are for you! We have covered the bases to create a wide variety of gifts that are unique, easy and fun to make for your friends, neighbors, the person who has everything and that person who you just have no idea what to buy for them! Plus there is an awesome giveaway too!Īdam and I spent a fun afternoon pouring flour and sugar, as well as spooning goodies, into a jar to make gifts for his cooking class teachers. With the Holidays quickly approaching, some blogger friends and I thought it would be fun to share some cooking-related handmade gifts. This particular recipe is for Chocolate M&M Cookies, but any cookie recipe could be used following the same layering concept. These are fun and easy to make, plus they make great gifts for the Holidays. Candy Cookies in a Jar is a recipe for cookie mix that is filled with lots of goodies and decoratively arranged in a jar. We have placed titles in the following international permanent collections, making the materials available to researchers & the public. Printed Matter's Los Angeles Art Book Fairīooked: Tai Kwun Contemporary’s Hong Kong Art Book Fair Press Play Book & Music Fair at Pioneer Works (Brooklyn) Happy Family Night Market at Abrons Arts Center (New York) Northampton Print & Book Fair (Massachusetts) Collins COBUILD Advanced Learners Dictionary. Melbourne Art Book Fair at the National Gallery of Victoria The car ferries from the mainland are often fully booked by February. Set in Sporting Grotesque & Italian Oldstyleįully Booked has exhibited as a vendor in the following international art book fairs, featuring curated materials that are often rare, hard to find, or in limited distribution. Full descriptions of the Editions may be found at the archive link for the successfully crowdfunded Kickstarter campaign. These Editions are now available through our inventory & directly via the artists. We commissioned & produced five distinct Benefit Editions in order to make the 2019 fair a reality, in close collaboration with Mazin Al-Maimani, Shamma Buhazza, Shahrzad Changalvaee, Somnath Bhatt, & VVORK VVORK VVORK. We appreciate the guidance & continuing support of Christina Skaf, Farah Al Qasimi, Raneen Bukhari, Sarah Alfarhan, Sarah Burney, Shahrzad Changalvaee, Somnath Bhatt, & Zandie Brockett. The flagship namesake fair-the first of its kind in the Gulf-premiered in 2017 in Alserkal Avenue, during the annual Dubai Art Week. It does not store any personal data.Fully Booked is a unique & curated international platform for creative publications & artists' books from or of the Middle East, North Africa, & South Asia, anchored by having produced three annual editions of the Dubai art book fair. The cookie is set by the GDPR Cookie Consent plugin and is used to store whether or not user has consented to the use of cookies. Mall Directory North Luzon SM City Marilao. The cookie is used to store the user consent for the cookies in the category "Performance". This cookie is set by GDPR Cookie Consent plugin. The cookie is used to store the user consent for the cookies in the category "Other. The cookies is used to store the user consent for the cookies in the category "Necessary". The cookie is set by GDPR cookie consent to record the user consent for the cookies in the category "Functional". The cookie is used to store the user consent for the cookies in the category "Analytics". These cookies ensure basic functionalities and security features of the website, anonymously. Necessary cookies are absolutely essential for the website to function properly. Yes, I am, but with age comes experience and lots of it.Īnd you can tap into all of that experience and shortcut your journey to success. If, as I suspect, you’ve done the maths, you now realise that 20 + 17 = 37 and if you tack that on to however old I was when I went into sales (23) I must be officially fucking old. MANILA, Philippines Fully Booked has announced that three of their Metro Manila branches the ones in Torre Lorenzo, Century City Mall, and Ayala Vertis North will be closing down. I understand not just marketing, but also sales and more importantly, the coaching industry. This is why I’m different from most marketing coaches you see advertising all over social media. I just happen to be a coach who is now very good at marketing with 20 years of sales experience to boot. Then I did it all again in 2013 when I launched Coach the Life Coach and I now have an email list of almost 5,000 coaches and a Facebook Group of over 6,500 and I’m always full with clients. In 2005 I took my first coaching practice, A Daring Adventure, from nothing to a website that was getting 50,000 unique visitors per month and a newsletter with over 10,000 subscribers and a waiting list of clients paying me up to $5k each. Because apart from helping over 350 coaches over the last decade, I’ve also done for myself exactly what you want to do. Other books have been created from notes and jottings left behind. Eliot and Dante Alighieri?īooks written under the names of dead people are only one aspect of a vast and lucrative necro-publishing industry. Andrews can write posthumously, why not Flannery O'Connor, T.S. Where does it all end, this business of dead writers writing? The possibilities are mind-boggling. But Asimov's "Chronology of Science and Discovery" is advertised as "updated through 1993"-though Asimov died in 1992. Mostly they are stories and essays by Asimov. Various collections and anthologies bearing his name continue to appear. The act of foisting upon readers a novel that could not have been written by Lawrence Sanders as a work by him seems particularly questionable and sooo late-20th-century, along the lines of silicone implants and digitally enhanced photographs.īut "why should a little thing like death put an end to my writing?" Isaac Asimov wrote in a letter two years before he died. Lovecraft wrote under more than a dozen other names besides his own. Writing under other names is a practice as old as the pen. "The murder mystery as comedy of manners may seem an old-fashioned genre in today's graphically violent mystery world," reads the unsigned critique of "McNally's Dilemma," "but Sanders makes it as fresh as tomorrow." The Post and New York Times lists state, without comment, that Lawrence Sanders is the author of "McNally's Dilemma." The reviewer in Publishers Weekly didn't seem to have a clue. We did clearly state that the book was written by Vincent Lardo." Because Lardo is a writer in his own right, Ducksworth adds, "we thought it was appropriate to keep the two separate. "It was Larry's estate's wish to continue publishing the McNally books," says Putnam spokeswoman Marilyn Ducksworth. Efforts to reach Lardo through the publisher were unsuccessful. "The Hampton Affair" by Vincent Lardo is also listed in the current Putnam catalogue. The page devoted to the novel gives no indication that the book was written, um, created by Vincent Lardo. In the Penguin Putnam online catalogue, the book is listed along with other Sanders works. The back of the jacket lists four blurbs of praise for Sanders. The book's cover and dust jacket read as if the novel were written by Sanders. 10 on Sunday's Washington Post hardcover fiction bestseller list and No. For years, books by Lawrence Sanders have immediately jetted onto bestseller lists. Obviously, some publishers believe that a brand-name writer, such as Lawrence Sanders, on the book's cover will sell more books than a writer who is virtually unknown, such as Vincent Lardo. One could argue that death has been very, very good to some writers. "It's kind of a sticky issue around here," says one Pocket Books spokesman. A new Andrews series, "The Wildflowers," debuted in July. Andrews, though the real Virginia Andrews died in 1986. Andrew Neiderman, a Palm Springs, Calif., author, continues to scribble scribble scribble for Pocket Books as V.C. Ron Hubbard died in 1986, but folks still crank out science fiction and spy novels under Hubbard's name. Books "by Louis L'Amour" continue to pop up every year or so, though the prolific western writer died in 1988. The dead-author industry is alive and well. What Putnam has done is not unprecedented. And I was surprised that they were able to present it that way." When Lee discovered the deception, she was peeved. "The publisher and the estate of Lawrence Sanders have chosen Vincent Lardo to create this novel based on Lawrence Sanders's beloved character Archy McNally and his fictional world." That's when Lee leafed back to the front of the book and read the fine print on the copyright page: And the humor was just too damn ham-fisted. Archy McNally, the private-eye protagonist, was more chatty than in the other McNally books-including "McNally's Luck," "McNally's Puzzle" and "McNally's Secret"-she had read. It said so on the cover.īut when Lee, a serious Sanders fan, started reading the novel, something was not quite jake. Julie Lee, a secretary with a defense contractor in Rosslyn, cruised by a Crown Books store recently and picked up the bestseller "McNally's Dilemma" by Lawrence Sanders.Īt least, she thought it was by Sanders. But with so many brands and flavors out there, it can be hard to decide which one to choose. When we think of a road trip snack we know beef jerky is a classic choice. 1/4 cup raisins or dark chocolate chips or both (optional). 1/2 cup nut butter of your choice - we like almond butter.Plus, they'll give you the energy you need to keep driving (or exploring)! Here's a quick and easy recipe for energy balls that you can make before your next road trip: Ingredients Keep reading for our favorite recipe for easy Energy Balls!Įnergy balls are the perfect road trip snack and kids love them! They're easy to make, healthy, and portable. Dark Chocolate: that's 70% or more cocoa - for your sweet tooth!.Popcorn: air-popped or coconut oil popped, ditch the microwave popped kind.Hard Boiled Eggs - they're so easy to store and eat on the go!.Gluten Free Crackers & Dehydrated Veggie Chips - there's so many creative ways to add some crunch in your snacks these days.Prebiotic bars - We love and recommend the Truth Bar.Nut Butters or Energy Balls - we like using almond butter the most.Dried Fruit - Better yet why not grab a Larabar which is fruit and nuts in one!.Nuts and seeds: raw almonds and pistachios.Fresh Veggies: carrot sticks, celery sticks, cucumber slices, bell pepper strips, cherry tomatoes.Fresh Fruit: apples, oranges, bananas, grapes, and blueberries.Salads topped with your Olive My Pickle ferments like radishes, okra, green tomatoes or your favorite kraut.Turkey Roll Ups: It's a slice of turkey, cheese and a raw fermented pickle or kraut all rolled up in one.Half an Avocado stuffed with Fermented Olive My Pickle Kraut.A Handful of Olive My Pickle Olives □ - we like snacking on cubed cheese and olives.Raw Fermented Olive My Pickle - Pickles □ - our #1 way to fuel our adventures.Your gut, your mind, (and your taste buds) will thank you. So next time you're planning a road trip, don't forget to take the time to pack your pickles and a few of your favorite fermented foods like olives, kraut, kimchi, and LiveBrine pickle juice along with a few of these healthy snacks. And best of all, they'll help you stay on track with your gut health and healthy living goals. Good snack foods and the right cold drink are actually very easy to pack and eat on the go. Not only will this help you stay energized and focused by keeping your mind awake, but it will also prevent you from making unhealthy hangry food choices along the way to your final destination. One way to make the most of your time on the road and keep your body fueled is to eat super gut friendly quick bites that are full of fiber, healthy fats and probiotics. Spending hours in the car can be boring, tiring, and stressful, but it doesn't have to be. While road trips are a great way to get out and explore, they can also be a test of your patience and resolve. But don't worry, these junk food alternatives are still delicious enough to distract you from the long drive.Importance of eating healthy food on your road trip Short on time (read: not interested in studying nutrition labels) or need a little more guidance than that? These nutritionist-approved healthy road trip snacks-for both kids and adults alike-provide a great place to start. If you stop for munchies or meals, do the best you can by seeking options that have some veggies and whole grains. What's more, heavy fast-food meals are harder to digest, so your body needs to spend its energy on that process, which can leave you drowsy," says Cassetty. "Heavily processed foods that contain added sugars and other empty carbs can produce fatigue and leave you feeling less focused. Though the classic candy selection or that bag of potato chips at the gas station may be calling your name, you're better off buying or making yourself something healthy before you hit the road. "It’s also important to stay hydrated, since a low fluid intake can make you tired." "During a long drive, it’s ideal to fuel up with steady forms of energy, which means balanced meals and snacks that don’t contain empty carbs, like refined grains and added sugars," says Samantha Cassetty, MS, RD, nutrition and wellness expert. Of course, they'll keep any kids you have in tow happy and satiated, but they also help adults stay awake en route, which is crucial for drivers. Snacks aren't just a tasty part of your family road trip, they're an essential element. You can download Photomator from the App Store for free. You can now open Photomator documents in Pixelmator Pro with all nondestructive edits like color adjustments, crop, masks, and more.Photomator integrates seamlessly with iCloud Photos, so when you edit photos in Photomator on iPhone or iPad, the changes sync instantly to the photo browser in Pixelmator Pro and the Pixelmator Pro extension in Photos. Pixelmator is frequently updated to support the latest Apple technologies and platform features and uses iCloud to sync and collaborate on projects across its iOS and macOS apps. Continue editing photos from where you left off, no matter if you're using Photomator on iPhone, iPad, or Mac, thanks to instant edit syncing through iCloud.Enjoy support for iCloud Drive, Versions, a full-featured Photos extension. Designed exclusively for macOS, Pixelmator Pro supports almost every major macOS feature and integrates seamlessly with macOS Ventura. Enjoy the familiar design and navigation experience, and use all the same tools you already love from iPhone and iPad versions on a Mac. Pixelmator Pro is a Universal app that is fully optimized for Mac devices with Apple silicon. From now, Photomator is also available on Mac, making it the first, fully cross-platform app created by the Pixelmator Team.The update also adds the ability to sync edits between Photomator on Mac, iPhone, and iPad using iCloud, improves the compatibility of Photomator documents with Pixelmator Pro, and more. Photomator 3.0 brings the award-winning photo editing experience over to desktop devices. With the Pixelmator Pro Essentials Tutorial learn all the tools and other essential elements for photo editing and creating graphics in Pixelmator Pro. Welcome Campaign for New Recruits and Returning Soldiersīase rewards (DP, EXP, CP) will increase 5 times for new recruits who have joined Battle Operation 2 in less than 14 days, and returning soldiers have not logged in to Battle Operation 2 for 45 days or more. * The player must be a member of the clan when it levels up to claim the reward. Please use this opportunity to battle with your friends! The clan leveling reward, which is available when the clan levels up, will increase 5 times during the campaign period. During this period, your achievements will be carried over to the next day. * Unlike the daily missions, you don’t need to complete all the missions in one day. ZZ Gundam joins the battle! New visual revealed!įinally, ZZ Gundam from “Mobile Suit Gundam ZZ” enters the fray! In addition, a new visual has also been released.ĭuring the campaign period, special limited-time missions will be available.Ĭomplete the limited missions during the campaign period and get a special reward, “Gaza C”!Ĭampaign Period: 21st July 2020 (TUE) 14:00 – 27th August 2020 (THU) 13:59 Week 5: 20th August 2020 (THU) 14:00 – 27th August 2020 (THU) 13:59 ĭuring the campaign period, you will receive login bonus for 5 weeks, including tokens, MS, and other luxurious 2 Year Anniversary Containers when you log in to Battle Operation 2! Be sure to log in to the game to receive your 2 Year Anniversary Containers during the campaign period!įor more information on each 2 Year Anniversary Container, please visit the official website at p=40606.Plus, one ★★★ MS guaranteed! (1 unit x 5 weeks = maximum of 5 ★★★MS units available) Weekly 10-times draw! One ★★★ MS guaranteed!Īll the MS & armaments that have appeared in the Supply Drop are available for 10 free draws every week! (10-times draw x 5 weeks = maximum of 50 draws) From desktop-to-desktop, desktop-to-mobile, mobile-to-mobile, or to unattended devices like servers and IoT devices. The TeamViewer remote access software is easy to use and scalable and allows you to connect to and monitor any device, anywhere in the world. The company has faced a battle with its reputation since, however, it is still installed on over 1.5 billion machines around the world. In 20, TeamViewer suffered a number of hacks that exposed the personal details of a large number of its users. We have tried to cover the best value alternatives in this article. There are several free and cheap TeamViewer alternatives available for Windows, Mac, Linux, and Android, as well as browser-based options. For business users, it allows them to support their IT infrastructure, provide desktop support to their workforce, and give employees tools to collaborate from remote locations.Īlthough TeamViewer is one of the big players in the remote access software market, it is far from the only solution. For home users with multiple PCs, it allows them to get remote access to their machines and files from anywhere that has an internet connection. Much like LogMeIn, TeamViewer provides connectivity services to both home and business users. Its feature set includes a remote control, desktop sharing, online meetings, and web conferencing, as well as file transfer between computers. TeamViewer is a leading Remote Access Software. I feel like its such an incredible way to be fully enveloped in the story without being caught up on pronunciation or flow of the writing style- in other words it takes the work out of it for a lazy soul like myself. I drive for a living so I've been able to enjoy so many of his stories this way in the past couple of years while at work! I've been listening to a majority of the King books and still consider myself a "constant reader". Honestly though, storytelling both pre-dates and eclipses written text so far as humanity is concerned, so the text snobs can go pound rocks :) I get the sense sometimes of a current of "reader-snobbishness" attached to audiobooks because they make a lot of texts more accessible to a wider audience that doesn't have to "work" as much to receive it. Had I listened to the audiobook first however, my own views on the character would likely have never arisen, being colored by the performance rather than just the text. Still, that did not invalidate my earlier take on him either, and when I think about the character I have both versions competing in my head. Suddenly, this character I thought I knew so well became much more sympathetic because of the way the lines were delivered, and I considered him in an entirely new light. On the one hand, I have read "The Lord of the Rings" literally 20+ times since I was a kid, but I radically re-evaluated my idea of who Denethor was after hearing his dialogue delivered via narration in the audio version. You are hearing the way someone else interprets every character and line in the story rather than the way you might, which is simultaneously wonderful and terrible in different ways. Nevertheless make no mistake it is absolutely a different medium with a different way of appreciating the story. In truth, I always loved being read to, and still remember fondly the times when my grade school teachers would read to the class. I was always an avid, lifelong reader, but demands on my time made audiobooks a necessary alternative that I fell in love with. Related links: Click here for a complete list of all King's literary works!īig thanks to eferoth for the Pennywise logo.įill out the book ranking survey if you'd like to! Filter Content: Images Videos Discussions Theories Fan Art Polls He thrusts his fists against the posts and still insists he sees the ghosts. Have a spoiler you want to share? Make sure you mark it! He thrusts his fists against the posts (/spoiler) Buyers and sellers assume all risk and this sub nor its moderators are responsible for any scam or unsatisfactory exchange. No book club editions or 1st editions either unless it falls into one of the above stated categories. Regarding Buying and Selling of books: You are allowed to buy and sell rare or collectible books (Cemetery Dance, signed copies, paperbacks of the Bachman books etc.) We do not allow people to use the sub like eBay and sell their collections or mass published books.If you disagree with this, click on the post, and select "hide" to no longer see that post. Original Fan art or art you found online (please mention original poster or artist).REMINDER: Please flair your posts AFTER submission and mark spoilers accordingly. Discussions, debates, civil disagreements, questions, epiphanies, theories, polls etc.It is updated upon every major release and a great list to decide what next to read. What Should I Read Next? - Here is a list of the majority of King's books ranked by Barnes and Noble.Any abusive, trolling, derogatory or threatening comments are strictly prohibited. Hate Speech - You may disagree in your opinions but it must be done so civilly.Spoilers - There is a guide for how to hide sensitive information below.Piracy - No links to download copied or stolen books, movies or other Stephen King IP.Any user who shares a link in the comments that leads to a store for said t-shirt will also be banned. T-shirt spam and bots are a constant issue so any t-shirt post where OP includes a link to a store will be deleted and the user will be banned. Self promotion - while fan art and self made projects are welcome to share, this is not a platform to sell on.Stephen King related books, movies, TV, the man himself,īreaking any of the following may lead to deletion or banning. Open discussion is the goal of this sub but all posts must be. This website may be used for personal use only. SAVEVIDEO.ME allows you to download dailymotion videos, download from vimeo, download facebook video and many others. You want to discover the world differently Explore the new redesigned and intuitive home feed and follow feed Follow video updates from your favorite. In addition, third-party servers of video sites/hosting/platforms or social media may also limit video download speed depending on geolocation or other reasons. A user can create their own channel to post content, but most users will simply view content. "Direct link" is a link that directly points to a video file, and which is used inside a video player on a third-party server of a video hosting/site while watching (Caching) a video in the user's browser.ĭownload speed depends on the weight of the video file you are saving, on the video duration and on the bandwidth of the internet connection (On all sides). Dailymotion provides high quality videos to its users, and a given user may upload their own videos for others to enjoy. And the number of available direct links may differ for each specific video. 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